Prepping for Saturday

Hey everyone! So this morning a really exciting thing happened! I was sitting at my desk at work and a co-worker of mine said, "What in the world is UPS bringing here???" Oh, I was so excited, I jumped up out of my chair and said, "My Dystonia stuff, my Dystonia stuff!!!!! YIPPEE" and so I opened the door for the UPS guy, quickly signed my name on that stupid electronic pad that looks like my 2 year old wrote his name on, and then tore into the boxes! The first box was a box about 3 feet long but only about 3 inches wide and 3 inches deep and i knew that in there had to be our banners and SURE ENOUGH, there they were! 2 banners 5 feet by about 2.5 feet with the Dystance4Dystonia logo and the DMRF logo on it! They are FAB!!!!! The other 2 boxes were, I assumed, going to be all the literature and bags for the runners and I opened a box and get this: THEY WERE ALREADY STUFFED!!!!! They already had all of the Dystonia literature put in them and so all we will have to add to them is the extra stuff we get from local vendors. Here is a picture of the banner..... forgive the 2 year old that dodged into the picture..... I wanted you all to see it and I will see you on Saturday! Please do everything in your power to be there Saturday to help and then definitely plan on helping the 9th! Please do not make me do this alone! This is a group fundraiser and I need everyone's help in making this happen!!!

Whew!

Boy, I sure am glad that is over! Charlie Platt was fun and exciting to do but that sure was early in the morning and I hope that you all were well represented! There was lots of good questions posed and hopefully, some conversations being stirred in the community about the event! I hope to see you all on Saturday or hear from you between now and the 9th!

it's coming together

Hello all! Just touching base for an update! It is all coming together! We are getting things in the mail from Birmingham to put in the runner's packets, I'm having daily communication with Chicago regarding little details, signage has been done, banners have been ordered, t-shirts are being printed, etc! Just really keep pushing the runners! We want an EXCELLENT showing of people to participate!

Charlie Platt

Good morning all! Touching base with you all to let you know that dad (Tim Hornsby) and I (Rebecca Sharp) will be going on the Charlie Platt show Tuesday, September 28, 2010 at 6:00 a.m. to promote the Dystance4Dystonia run and to share the effects of Dystonia. Top of the Morning with Charlie Platt is on Channel 18 - Dothan at 6:00 a.m. We hope you will watch and hope that we represent you all well! If someone would record it, that would be great to keep in our records for the future! ~Rebecca

Preparation Meeting planned for October 2

Just posting on here that we are planning a meeting at 10:00 a.m. on Saturday, October 2, 2010 at Covenant United Methodist Church to begin preparing for the Dystance4Dystonia race that we are having on October 9. We will be preparing runners packets, folding shirts, gathering last minute donations, etc. and will use all the help we can get! Nobody will be turned away! There will be jobs such as sorting and 'stuffing' bags, traveling to donors to pick up last minute donations, preparing all the 'tables' and other logistical jobs! I will try to make sure all of you are out and back at home by the time football gets started. We will be meeting in room 116 of the CLC, the room we always meet in. If you have any questions, reply to this post or email me. Thanks a ton and hope to see you all there! ~Rebecca

Dystance4Dystonia runner registration form

We Have Joined the Internet!

Hello to all! We have finally joined the internet and hope that this will help provide you all the most recent Dystonia news as is applicable to us here in the Southeast along with keeping you updated on speakers, events, and other exciting things coming up in our support group! Please post comments and feel free to keep a running conversation going about anything posted on here through all of your comments! We will try to make sure and keep good, active links to other sites concerning Dystonia that may be of any interest to any of you and feel free to recommend anything to be put on here that you have found helpful! We hope that you are able to utilize this as it is meant and send all of your friends and family here to get more information and to stay informed! Thanks to you all!!!