Sweet Imagery and DMRF

Sweet Imagery and DMRF have partnered together to create custom Holiday cards with 50% of the proceeds going to DMRF! Let's spread awareness through the holidays!

contact SweetImagery@gmail.com or visit http://sweetimagery.blogspot.com for more information or to place your order!

Southeast Regional Dystonia Symposium – May 12, 2012

Hosted by Dystonia Support Group of Alabama
May 12, 2012

Arrington Auditorium
Linn-Henley Research Library
2100 Park Place,
Birmingham, Alabama

This all-day symposium is free to individuals with any form of dystonia and their family members and/or caregivers. Advance registration is required. Registration includes all sessions, breakfast bar, lunch, and afternoon refreshments. Registration is limited to 80 attendees due to space.

Guest speakers include:
--Janet Hieshetter, Dystonia Medical Research Foundation
--Dr. Erwin Montgomery, University of Alabama, Birmingham
--Dr. Mahlon DeLong, Emory University
--Howard Thiel, ST/Dystonia, Inc.

To register, email Ken Williams at klwmgw216@aol.com This e-mail address is being protected from spambots. You need JavaScript enabled to view it

8:15 am - Registration Opens & Breakfast
8:45 am – Sessions Begin
12:15 pm – Lunch
1:00 pm – Afternoon Sessions & Break-out Groups
4:00 pm –Meet Adjourns
A special rate of $99/night (not including tax) is available for a block of rooms at the Sheraton Birmingham Hotel intended for those attending the symposium who require overnight lodging. The rate will expire April 11.

Dystonia Support Group meeting - Saturday, February 11, 2012

Well, the time is here for the February Dystonia Support Group meeting.  The date will be Saturday, February 11, 2012.  The place is at Covenant United Methodist Church, Dothan, Alabama.  We will have the usual 'meet and greet' at 9:30 and the meeting will begin at 10:00.  We will be out around 11:00.  Please feel free to contact us at DothanDystoniaSupportGroup@gmail.com for more information.

See you Saturday!!

Birmingham meeting - 1/21/2012 - Dr. Karen Jauarajs, guest speaker

DSGA MEMBERSHIP MEETING

       10:00 am - Saturday, January 21, 2012

  A "MUST ATTEND" EVENT FOR DYSTONIA

          PATIENT'S & FAMILY CARE GIVERS

If you read my HOLIDAY GREETINGS bulletin, you've had prior notice of a must attend membership meeting for anyone suffering with dystonia of any type and their family or care givers.

We've had previous presentations from researchers trying to find the cause and a cure for Dystonia, the 3rd most common neurological disorder after Parkinson's & Essential Tremor.  Research progress is being made --- BUT at seemingly for us with dystonia, at a snail’s pace.

We've heard several times from Drs. Guy & Kim Caldwell of the WORM SHACK who've made a breakthrough, Dr. Yuqing Li, formerly doing follow-up studies on the Caldwell's findings at UAB but now heading a research team at University of Florida/Gainesville, and we toured the UAB

Movement Disorder Center as part of the May 2011 UAB DYSTONIA SYMPOSIUM.

If you had your eyes open during that UAB tour, you recognized that

DYSTONIA RESEARCH was not a separate unit within the Movement Disorder Center. 

Dr. David G. Standaert, PhD, MD, head of the CNET Center we toured soon thereafter decided to establish the DYSTONIA RESEARCH ACCELERATION PROGRAM within CNET...starting with recruiting a leading dystonia researcher.  THE TASK HAS BEGUN.....

Dr. Karen Jauarajs (pronounced "Yanna-rice") joined UAB in November 2011 for the

specific task of building the UAB Research Acceleration Program, a separate division with

the CNET center we toured at UAB.

Dr. Jauarajs, accompanied by Karen Tully, director of Community Outreach under

Dr. Standaert at UAB, have accepted our invitation to speak to DSGA at the

January 21, 2012, regular meeting.

Dr. Jauarajs will give us a little visionary "research news".

She is well published on Dystonia Research and meets the high standards set by

Dr. Standaert to "head up the separate Dystonia Research Acceleration program at UAB."

The meeting begins at 10:00 am at our regular meeting site in 2nd floor classroom at

LakeShore Rehab Hospital....park in front, enter thru main entrance,

go through the reception area, take a left & an immediate right to the elevators,

punch Floor #2, exit to the right toward the cafeteria

and just before reaching the cafeteria the meeting room door is on the right.

We have a number of new members & newly diagnosed dystonia patients

whom we expect to attend, but we need your support.....and you need to

meet both Dr. Jaunarajs and Kate Tully.  Kate has been most helpful in assisting

DSGA members with appointments, etc. at UAB and

has displayed an ability to get past "gate keepers".

This quality of speaker deserves our attendance.

Let's fill the place up!!!!!  The subject should be "uplifting and NEW".

Please R.S.V.P. to klwmgw216@aol.com a YAY.

NAY's will only be accepted as "your loss".

Refreshments will be served.

Ken L. Williams, Volunteer Director

Dystonia Support Group of Alabama

Chapter of DMRF

Associate of NSDA & NSTA

2012 - First meeting of the New Year - January 14, 2012

Happy New Year to all of you!!!  I hope 2011 left in a nice way for you and I hope and pray 2012 is a nice year for everyone!!!

As you have probably figured out, I am reminding you of our next meeting scheduled for Saturday, January 14.  As usual, we will meet at Covenant United Methodist Church located on 3610 West Main Street, Dothan, Alabama.  We will meet in room 116 in the CLC.  We will have signs up to help show you the way to the room.  Nothing is scheduled, except to hear how everyone is getting along. 

We will begin gathering around 9:30 am and begin the meeting around 9:45 am so that we will be out by 11:00 am or so. 

Please RSVP so we will know how many to expect. 

We hope to see everyone!!!

Sincerely,

Tim and Virginia