DSGA MEMBERSHIP MEETING
10:00 am - Saturday, January 21, 2012
A "MUST ATTEND" EVENT FOR DYSTONIA
PATIENT'S & FAMILY CARE GIVERS
If you read my HOLIDAY GREETINGS bulletin, you've had prior notice of a must attend membership meeting for anyone suffering with dystonia of any type and their family or care givers.
We've had previous presentations from researchers trying to find the cause and a cure for Dystonia, the 3rd most common neurological disorder after Parkinson's & Essential Tremor. Research progress is being made --- BUT at seemingly for us with dystonia, at a snail’s pace.
We've heard several times from Drs. Guy & Kim Caldwell of the WORM SHACK who've made a breakthrough, Dr. Yuqing Li, formerly doing follow-up studies on the Caldwell's findings at UAB but now heading a research team at University of Florida/Gainesville, and we toured the UAB
Movement Disorder Center as part of the May 2011 UAB DYSTONIA SYMPOSIUM.
If you had your eyes open during that UAB tour, you recognized that
DYSTONIA RESEARCH was not a separate unit within the Movement Disorder Center.
Dr. David G. Standaert, PhD, MD, head of the CNET Center we toured soon thereafter decided to establish the DYSTONIA RESEARCH ACCELERATION PROGRAM within CNET...starting with recruiting a leading dystonia researcher. THE TASK HAS BEGUN.....
Dr. Karen Jauarajs (pronounced "Yanna-rice") joined UAB in November 2011 for the
specific task of building the UAB Research Acceleration Program, a separate division with
the CNET center we toured at UAB.
Dr. Jauarajs, accompanied by Karen Tully, director of Community Outreach under
Dr. Standaert at UAB, have accepted our invitation to speak to DSGA at the
January 21, 2012, regular meeting.
Dr. Jauarajs will give us a little visionary "research news".
She is well published on Dystonia Research and meets the high standards set by
Dr. Standaert to "head up the separate Dystonia Research Acceleration program at UAB."
The meeting begins at 10:00 am at our regular meeting site in 2nd floor classroom at
LakeShore Rehab Hospital....park in front, enter thru main entrance,
go through the reception area, take a left & an immediate right to the elevators,
punch Floor #2, exit to the right toward the cafeteria
and just before reaching the cafeteria the meeting room door is on the right.
We have a number of new members & newly diagnosed dystonia patients
whom we expect to attend, but we need your support.....and you need to
meet both Dr. Jaunarajs and Kate Tully. Kate has been most helpful in assisting
DSGA members with appointments, etc. at UAB and
has displayed an ability to get past "gate keepers".
This quality of speaker deserves our attendance.
Let's fill the place up!!!!! The subject should be "uplifting and NEW".
Please R.S.V.P. to klwmgw216@aol.com a YAY.
NAY's will only be accepted as "your loss".
Refreshments will be served.
Ken L. Williams, Volunteer Director
Dystonia Support Group of Alabama
Chapter of DMRF
Associate of NSDA & NSTA
